Amplifying Patient Voices in Rare Disease Clinical Trials

Understanding patient and caregiver experiences and how effective patient support strategies reduce barriers, increase retention, and improve outcomes in rare disease clinical trials. 

Explore the results gathered from our multi-phase research:

95% of respondents said travel was the primary reason to drop out of a trial.

97% of respondents said reimbursement for expenses made it easier to participate in the trial.

78% of respondents said having patient support services helped them enroll and remain in the trial.

100% of respondents said having a dedicated person to help them manage trial logistics was important.



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